IBD Patient Survey
Help us identify areas where IBD care can be improved in New Zealand
The link below is a questionnaire about IBD care and IBD Nursing in New Zealand. It will take about 10-20 minutes to complete. Your participation is highly valued because it will assist Gastroenterologists and IBD Nurses identify areas where IBD care can be improved in New Zealand.
Middlemore Clinical Trials
At Middlemore Clinical Trials, located at Middlemore Hospital Auckland, we are currently running a drug trial for people living with active (moderate to severe) Crohn’s Disease. If you would like to find out more information about the study, please Contact:
Jessica Purcell lClinical Research Nurse | Middlemore Clinical Trials (Formerly CCRep)
In association with Counties Manukau Health (CMDHB)
Crohn's and Colitis New Zealand Inflammatory Bowel Disease GEM Project
The GEM Project has arrived in New Zealand! GEM stands for Genetics – Environment – Microbiome and is a multi-national study, initiated by Crohn’s Colitis Canada and introduced to CCNZ already several years ago. As medical adviser to CCNZ I saw the merit in such research and after considerable negotiation was able to secure the rights to conduct the study in NZ.
The GEM study aims to recruit healthy First Degree Relatives of patients with Crohn’s disease and to follow them for 6 years. The aim is to find the difference between those who develop Crohn’s disease in this timeframe and those who don’t. FDRs are being asked to complete multiple questionnaires and give a blood, stool and urine sample. Following this, it is just a short phone call every six months for six years or until they develop Crohn’s disease. The relatives should be between 6 and 36 years, so we are looking for children and siblings primarily.
So far, 3500 people have been recruited world-wide of which 40 have developed Crohn’s disease. This study is a monumental effort. Every patient counts. Through CCNZ we hope to obtain the required number of patients and FDR’s
If you are interested, please send your name, date of birth and if you have, NHI number to us in Dunedin (Aroha Bolton; firstname.lastname@example.org) or myself; email@example.com). We will approach you and if you agree talk to your relative. We will then negotiate with your local specialist to be seen there. Please help to give this study a NZ flavor.
How will you change the future of Crohn’s disease?
A research study of a new combination antibiotic is now underway for people suffering from Crohn’s disease.
Doctors are seeking participants for a clinical study testing a novel approach for the treatment of Crohn’s disease: treating the bacteria which may be a cause of Crohn's disease.
The study medication is in pill form and is a combination of three antibiotics: clarithromycin, rifabutin, and clofazimine. Remission at week 26 is the primary objective of the study; however, the study duration is approximately 62 weeks.
In order to participate, you must be diagnosed with Crohn’s disease for longer than six months and be 18 to 75 years old.
Other criteria may apply.
Study participants will receive study related exams, lab tests and study medication at no charge.
Compensation is available.
Please visit http://mapmycrohns.com/NZ/about.html to learn more
Internet Posting RHB-104-01 ANZ 15-JAN-2015 Version 3. This study has received NZ HDEC approval.
Diagnosed with Crohn’s or Colitis? Research participants wanted!
We are looking for participants aged 18 years and older with a diagnosis of either Crohn’s disease or Ulcerative Colitis to complete two online questionnaires three months apart.
Each questionnaire will take approximately 20-30 minutes to complete and will ask questions about your mental and physical well-being and the social support you receive from others. Those who complete the 1st questionnaire will go into a draw to win a $150 Westfield voucher. Participants who complete both questionnaires will go into a draw for an Apple IPad mini.
This research is being carried out by Siobhan Hayde, and supervised by Associate Professor Roeline Kuijer of the University of Canterbury, Department of Psychology.
If you are interested in participating or wish to know more please contact,
Siobhan Hayde: firstname.lastname@example.org
This research has been approved by the University of Canterbury Human Ethics Committee