CCNZ Children’s /Teen Camp
Calling all children and teenagers with Inflammatory Bowel Disease
CCNZ invites child and teenage patients with inflammatory bowel disease to register interest in attending the first Camp for NZ children and teenagers with IBD to be held at:
Camp Adair, Auckland Sunday 25th January – Friday 30th January 2015
The objectives of the camp are to:
- Build confidence, independence, self- esteem, resilience and empowerment
- Enhance knowledge of IBD, self and peers
- Develop mutual support networks
through experiential and therapeutic learning activities involving;
- team and personal development,
- personal challenge,
- an experience of the outdoors,
in a safe, supportive, patient specific, peer group environment.
CCNZ has received funding to run this camp and hopes to be able to offer the opportunity for children and teenagers throughout New Zealand to attend with accommodation, food, activity and travel fees largely covered. We want to run a registration of interest process to gauge demand for places so that we can best structure the programme and eligibility criteria to cater to this.
A possible 2 day programme for parents and caregivers at Camp Adair is also offered from Sunday 25th – Monday January 26th 2015, but is dependent on the level of interest shown in attending. The programme would centre around the building of a mutual parent/caregiver support network as well as catering to the expressed needs of those registering.
To register interest in attending either the camp as a child or teenage patient, or interest in attending the programme for parents/caregivers, please complete the online registration of interest submission form(s) below.
Registration of interest for child/teenage patients and/or parents/caregivers closes on 31st July 2014.
For further information and enquiries email Charlotte at email@example.com
Management of Inflammatory Bowel Disease
in Children and Adolescents in New Zealand
This document aims to provide an evidence-based guide to the diagnosis and management of Inflammatory Bowel Disease (IBD) in children and adolescents across New Zealand. The recommendations within this document provide a guide and may not encompass every clinical situation.The guideline is formulated within the framework of the Paediatric Gastroenterology Clinical Network.
Patient Journey Research: Results
What is it like to live with Inflammatory Bowel Disease
in New Zealand?
Atlantis Healthcare were asked by Janssen-Cilag (a pharmaceutical company) to talk to people living with IBD about their experiences.
Atlantis Healthcare talked to people living with IBD and the people who care for them – carers; gastroenterologists; nurses; a surgeon; a dietitian; and people from Crohn’s and Colitis New Zealand and the Ostomy Society
From this we tried to capture what it’s like to live with IBD from a medical; physical; psychological and social perspective
This is called a Patient Journey
WORLD IBD DAY
There is a hive of activity across New Zealand as we celebrate World IBD Day. Crohn’s & Colitis NZ, along with our twelve support groups nationwide are proud to be helping raise awareness and increase knowledge of Inflammatory Bowel Disease with a focus this year on ‘Wellbeing’.
To mark World IBD Day support groups across the country will be hosting public meetings, a welcome opportunity for those dealing with Inflammatory bowel disease to come, learn and gain a better understanding in the treatment of these chronic diseases. These meetings provide a chance to ask questions, build a network of support and listen to guest speakers including Gastroenterologists, IBD Nurses, Dietician’s, and other IBD patients sharing their personal experiences.
In addition we are celebrating this occasion by launching our online submissions for the first New Zealand based camp for children and teenagers with IBD to be held in early 2015. This event has been made possible , thanks to money granted and donated as a result of the 2014 Ports of Auckland Fun Run held in March. Such generosity of spirit will ensure that young people with IBD in New Zealand will be given the opportunity to build confidence, independence, self-esteem and resilience and develop mutual support networks with their peers from around the country.
As we continue to support, advocate for and empower people affected by Inflammatory Bowel Disease, we acknowledge with gratitude the hard work and dedication of our many volunteers, donors and supports who stand by our side in the fight against IBD.
Thank you to everyone who attended our Wellington support group meeting recently. Dr Richard Stein, Gastroenterologist for the Hutt Valley DHB gave a presentation on Wellness and IBD. You can view his very interesting and informative presentation by clicking here.
The Autumn/Winter edition of our newsletter is here...
Dear Patients, Families and Supporters
It gives me pleasure to share with you our Autumn 2014 newsletter. Here’s hoping that this finds you well, since our health is so critical to being able to live to the full!
This newsletter aims to keep you informed about things that might help make life more liveable for people connected with inflammatory bowel disease, and to reduce the isolation that some patients can feel.
So this issue of our newsletter is packed with information and tips which might help your health, or give you more options to discuss with your doctor or things to look forward to. This includes our new 0800 number – 0800ASKIBD – see page 6.
Also, we are very proud to announce the holding of our first New Zealand camp for young people with inflammatory bowel disease next summer. Details are on the first couple of pages. Basically, the aim of the camp is to help young people to connect with others of their own age who have IBD, and to build confidence, independence, self-esteem, resilience and empowerment. We are really keen to hear from people who would like to come or help. The main funding is secure, thanks to the Ports of Auckland Fun Run last month, but we still need extra to make the camp a real success. So if you could donate, in cash or in kind, please do also contact us. Our email remains firstname.lastname@example.org , and a donation form is at the back of the newsletter.
Brian Poole, QSM
Chairman, Crohns & Colitis New Zealand
Crohn's & Colitis NZ is excited to be selling Entertainment™ Books and the new Entertainment™ Digital Memberships in 2014!
Order your new 2014|2015 Entertainment™ Membership from Crohn’s & Colitis NZ and 20% of your Membership purchase goes towards our fundraising!
0800 ASK IBD
We are here to help!
CCNZ has just launched a new toll free (landline and mobile) 0800 Number for Crohn's & Colitis related enquiries. You can now call us from anywhere in NZ without the worry of how much the call is costing you.
We welcome you to leave us a message and we will get back to you as soon as possible (within 24 hours).
Call us on 0800 275 423.
Massey University - IBD Study
Massey University Researchers Hannah Morton (a nutrition PhD student) and Jane Coad (Associate Professor in Human Nutrition) are conducting a nationwide study of Inflammatory Bowel Disease (IBD). The aims of the study are to investigate the possible associations between environmental factors, foods, and vitamin D level in New Zealanders. Massey University would like to invite individuals with a confirmed IBD diagnosis, and healthy controls (who do not have IBD or a history of gastrointestinal complaints), who currently reside in New Zealand, to take part in this research study.
The Corticosteroids research survey is now closed.
Thank you so much for your participation. We will publish the results once Professor Gearry has completed his research.
We are what we eat
Research recently completed at Auckland University by Professor Lynn Ferguson, Head of Nutrition at the School of Medical Sciences, suggests that says the rate of chronic disease in New Zealand could be slashed just by changing our diets.
Professor Ferguson recently spoke to the Wellington Support Group - watch her presentation here.
The oral health research survey is now closed
Thank you so much for your participation. We will publish the results once Professor Nolan has completed her research.
News from Europe - EFCCA's latest magazine
the first issue of EFCCA magazine 2014 is now available. We hope you enjoy reading about the latest activities, news from members and other interesting articles related to IBD, including latest developments in the treatment of IBD.
Is there a therapeutic role for faecal microbiota transplantation in ulcerative colitis?
By: American Journal of Gastroenterology
September 5, 2012
Faecal microbiota therapy (FMT) is the transplanting of faecal bacteria from a healthy individual into a recipient. It is an emerging treatment for several gastrointestinal disorders. There are case reports of FMT successfully treating ulcerative colitis, according to researchers from the University of Washington-Seattle. The researchers suggest that FMT as a treatment for UC holds therapeutic potential and deserves further investigation.