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Attention Crohn's patients in Christchurch, Wellington and Palmerston North

 

We need participants for a discussion group and are willing to pay you $60.

We are in in independent research/communications agency based in Wellington (GSL Promotus). We need people aged 18 years and over who have been diagnosed with Crohn's disease. It will be an informal discussion group with 6 other people with Crohn’s disease. The discussion will last up to 1.5 hours. We have been funded by AbbVie to help understand and look to improve health care experiences of people living with Crohn’s disease. So we need your help! The groups will be in Wellington on Tuesday 28th October, Palmerston North on Wednesday 29th October and Christchurch on Thursday 30th October from 6pm. If you are interested please text or phone Karlene Hazlewood on 0275728894 to find out more.



Dear Patients, Families and Supporters

It gives me pleasure to bring, to you, this Winter 2014 letter, to update you with the news since our last edition of our newsletter “Moving On. Here’s hoping that this finds you well, since our health is so critical to being able to live to the full!

This update aims to keep you informed about things that might help make life more liveable for people connected with inflammatory bowel disease, and to reduce the isolation that some patients can feel.

So this update is packed with information and tips which might help your health, or give you more options to discuss with your doctor or things to look forward to. 

Click here to view our mid Winter 2014 letter. 

Go well,  
Yours sincerely

 

 

Give Dad an Entertainment Book for Father's Day, and help our fundraising at the same time!

Thank you for your support!


A Guide for Patients with 

Ulcerative Colitis

There's now a new Patient Guide for patients with ulcerative colitis that enables you to record the details of your health on the same points-system as your medical team is likely to use and is called “How to complete your own Simple Clinical Colitis Activity Index” 

The idea is that, before appointments, you can fill it in with the details about your symptoms that the medical team are likely to ask about. Or, if you think that your colitis is flaring up, you could fill it in at home to verify this and then, if you need to seek medical help, you have got the information that the medical team will need to be able to take care of you. Our thanks go to Dr Russell Walmsley of North Shore Hospital for his work on this.

Simple Clinical Colitis Activity Index 
 

Free Resource for women 
with IBD 
From Surviving to Thriving - Top 5 health tips for women with IBD

Lana Vernon is a health coach and IBD patient on a mission to inspire women with Inflammatory Bowel Disease, not just to survive, but to thrive! She’s all about empowering you to take back control - helping you to rebuild your health and regain your life.

The e-book, titled 'From surviving to thriving', can be downloaded for free here.
 

Management of Inflammatory Bowel Disease

in Children and Adolescents in New Zealand

 

This document aims to provide an evidence-based guide to the diagnosis and management of Inflammatory Bowel Disease (IBD) in children and adolescents across New Zealand. The recommendations within this document provide a guide and may not encompass every clinical situation.The guideline is formulated within the framework of the Paediatric Gastroenterology Clinical Network.

The Clinical Guideline

 

Patient Journey Research: Results

What is it like to live with Inflammatory Bowel Disease
in New Zealand?

Atlantis Healthcare were asked by Janssen-Cilag (a pharmaceutical company) to talk to people living with IBD about their experiences.

Atlantis Healthcare talked to people living with IBD and the people who care for them – carers; gastroenterologists; nurses; a surgeon; a dietitian; and people from Crohn’s and Colitis New Zealand and the Ostomy Society

From this we tried to capture what it’s like to live with IBD from a medical; physical; psychological and social perspective

This is called a Patient Journey


'Moving On' 

The Autumn/Winter edition of our newsletter is here...

'Moving On' - Autumn/Winter Edition 2014

Dear Patients, Families and Supporters

It gives me pleasure to share with you our Autumn 2014 newsletter. Here’s hoping that this finds you well, since our health is so critical to being able to live to the full!

This newsletter aims to keep you informed about things that might help make life more liveable for people connected with inflammatory bowel disease, and to reduce the isolation that some patients can feel.

So this issue of our newsletter is packed with information and tips which might help your health, or give you more options to discuss with your doctor or things to look forward to. This includes our new 0800 number – 0800ASKIBD – see page 6. 

Also, we are very proud to announce the holding of our first New Zealand camp for young people with inflammatory bowel disease next summer. Details are on the first couple of pages. Basically, the aim of the camp is to help young people to connect with others of their own age who have IBD, and to build confidence, independence, self-esteem, resilience and empowerment. We are really keen to hear from people who would like to  come or help. The main funding is secure, thanks to the Ports of Auckland Fun Run last month, but we still need extra to make the camp a real success. So if you could donate, in cash or in kind, please do also contact us. Our email remains info@crohnsandcolitis.org.nz , and a donation form is at the back of the newsletter.
 

Go well,  

Yours sincerely 

Brian Poole, QSM

Chairman, Crohns & Colitis New Zealand

  

0800 ASK IBD

We are here to help!

CCNZ has just launched a new toll free (landline and mobile) 0800 Number for Crohn's & Colitis related enquiries.  You can now call us from anywhere in NZ without the worry of how much the call is costing you.  

We welcome you to leave us a message and we will get back to you as soon as possible (within 24 hours).
Call us on 0800 275 423. 

 


Massey University - IBD Study 

Massey University Researchers Hannah Morton (a nutrition PhD student) and Jane Coad (Associate Professor in Human Nutrition) are conducting a nationwide study of Inflammatory Bowel Disease (IBD). The aims of the study are to investigate the possible associations between environmental factors, foods, and vitamin D level in New Zealanders. Massey University would like to invite individuals with a confirmed IBD diagnosis, and healthy controls (who do not have IBD or a history of gastrointestinal complaints), who currently reside in New Zealand, to take part in this research study.

Click here for more information

   

The Corticosteroids research survey is now closed.

Thank you so much for your participation.  We will publish the results once Professor Gearry has completed his research.

Click here for more information

 

We are what we eat

Research recently completed at Auckland University by Professor Lynn Ferguson, Head of Nutrition at the School of Medical Sciences, suggests that says the rate of chronic disease in New Zealand could be slashed just by changing our diets. 

Professor Ferguson recently spoke to the Wellington Support Group - watch her presentation here.

  

The oral health research survey is now closed

Thank you so much for your participation.  We will publish the results once Professor Nolan has completed her research.

 

News from Europe - EFCCA's latest magazine 

EFFCA Magazine

 

Horizons 2020 -

the first issue of EFCCA magazine 2014 is now available.  We hope you enjoy reading about the latest activities, news from members and other interesting articles related to IBD, including latest developments in the treatment of IBD.

 


Is there a therapeutic role for faecal microbiota transplantation in ulcerative colitis?

By: American Journal of Gastroenterology
September 5, 2012

Faecal microbiota therapy (FMT) is the transplanting of faecal bacteria from a healthy individual into a recipient. It is an emerging treatment for several gastrointestinal disorders. There are case reports of FMT successfully treating ulcerative colitis, according to researchers from the University of Washington-Seattle. The researchers suggest that FMT as a treatment for UC holds therapeutic potential and deserves further investigation.

 

 

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Page Updated: 15 October 2014