'MOVING ON' NEWSLETTER 

Winter 2024

• Celebrating World IBD Day in New Zealand
• Overview of tests
• Funding needed for “JAK inhibitors”
• We are excited to announce the dates of the 2024 Camp Purple Live Parent & Caregivers' Seminar.
• NZSG's commitment to knowledge, advocacy, and treatment access.
• One person's determination leads to improved bathroom accessibility for Wellington's IBD community.
• Camp Purple: A lifeline of friendship and fun for "kiwi kids" with IBD.
• A glimpse into Camp Purple Live's "Experience Camp for a Day" program.
• Meet our NEW Camp Purple Live Committee!
• Eat beetroot?
• Introducing Nutritional Therapy for IBD
• Patients’ Perspectives on Delayed Diagnosis of Inflammatory Bowel Disease: A Qualitative Analysis
• Meet the team behind the Wellington support group.

Summer 2023/2024

• Another representative for CCNZ and Camp Purple, Professor Andrew Day recognised as a Kiwibank Local Hero Medallist
• Exciting News: Winner of the Nurses Travel Award!
• The Importance of Being in Remission Before Considering a Pregnancy and What Your IBD Team Can Do for You
• JAK inhibitors for IBD – an exciting new approach to managing IBD
• Camp Purple Live 2024: A Spectacular Adventure at El Rancho, Waikanae
• All about food and IBD.
• The IBD Nurse in the Private and Rural Sectors
• Christmas Classic with a Twist!
• NZ IBD Patient’s Postcode Lottery access to Gastroenterologists and Specialist Nurses
• Neglecting your IBD - from a personal teenage perspective
• Codesign and consultation ensuring consumer needs are met: Building an eHealth platform for Children with IBD.
• A Journey from Patient to Coordinator - Meet Kade West-Hill, Whangārei's New Crohn’s and Colitis Support Group Coordinator
• Jasneel Deo's commitment to the EFCCA "Leaders of Tomorrow" Youth Academy Program
• From Teenager to Triathlete: My Battle with Crohn's Disease and the Journey to Reclaiming Life
• From lockdown challenge to family marathon: Donovan Neill's inspiring journey for CCNZ
• Highlights from the 9th Annual Parents and Caregivers Seminar
• From 5km to 42km: My Marathon Journey for Crohn's and Colitis NZ
• Empowering New Zealand Students with IBD: Applications Now Open for the 2024 Giving Circle Scholarship Award.
• Running for a cause!

Winter 2023

• A primer on the new biologicals.
• New Zealand Society of Gastroenterology Update
• ‘Update from the IBD Nurses’.
• Diet, micronutrients and Crohn disease: summary of a recent study.
• Embracing Autumn's Bounty: Exploring the Delights of Pumpkin and Its Health Benefits
• Answering your questions about Vitamin D for people with IBD.
• Current state of dietetic services for inflammatory bowel disease patients in New Zealand: Survey Results and Research Highlights.
• Crohn’s and Colitis New Zealand Charitable Trust Announces Two New Ambassadors
• Spreading Awareness and Making Strides: Updates on Charlotte's Efforts and the 'I Can't Wait' Campaign
• Embracing the Blessings of Living with IBD: Highlights from World IBD Day.
• Camp Purple Live, 2023: Empowering Children with IBD for a Life Beyond Limits
• Founder of Crohn's and Colitis New Zealand Trust Steps Back After 13 Years.
• We are excited to announce the dates of the 2023 Camp Purple Live Parent & Caregivers' Seminar.
• REGISTRATIONS FOR CAMP PURPLE LIVE 2024, NOW OPEN!
• Embracing the Purple Spirit!
• Building Strength and Support: Introducing the Wairarapa Support Group for Crohn's and Colitis
• Meet Tanya, our new Coordinator for the Manawatu – Whanganui Crohn’s & Colitis Support Group

Summer 2022/2023

• What do we have in common with Cotton-Top Tamarin Monkeys?
• Living with IBD - seminar & workshop
• ‘We need more IBD Nurses’
• Camp Purple Live 2023 - update.
• Starship to hire a paediatric IBD nurse and clinical psychologist!
• Meet the IBD Clinical Nurses Specialists for Capital & Coast, Wellington.
• Camp Purple Research.
• What is CCCare?
• Korrin Barrett’s (life unlimited) story.
• Interview with Jesse Sigurdsson of Shining Peak Brewery and why they chose to support Camp Purple Live.
• Fundraiser! - Kade West-Hill
• Support Group Coordinators Conference
• Meet Kerry, the coordinator for our Bay of Plenty Support Group.

Autumn / Winter 2022

• Change of supplier and brand for adalimumab
• Living with IBD - seminar & workshop - update
• What is the fuss about the IBDeat study?
• Camp Purple Live 2023 - update.
• Crohn’s Colitis Care can now be used to help manage children with Inflammatory Bowel Disease!
• World IBD Day 2022! IBD & Life Cycles.
• Our new and revised Living with IBD handbook is out now!
• Welcome aboard Claire Weatherford.
• Introducing the committee of the Canterbury CCSG.
• Give a little fundraiser… Jamie Reddish.
• Peter Warren featured in our video for World IBD Day 2022. 

Summer 2021/2022

• We Can't Wait Campaign (#wecantwait!) - Update
• Living with IBD - seminar & workshop.
• Quality of Life study.
• Camp Purple Live 2022 - update.
• First time camper recounts his experience at Camp Purple Live 2021
• We need more IBD Nurses in New Zealand
• Learning self-management of your IBD
• Belinda Brown, our new Chief Executive Officer
• The IBDeat study: Does IBD affect what you eat or how physically active you can be?
• We have been very busy revising and updating our Living with IBD Handbook.
• Clinical Trials in Inflammatory Bowel Disease - Help yourself and others
• Intro to Mindfulness & IBD.
• Introducing Christina and the Southland Crohn’s and Colitis Support Group.
• Introducing Auckland CCSG.
• We spoke to Donovan Neill about why he is fundraising for CCNZ.
• Fundraising for CCNZ - Luke White
• From one of Camp Purple’s supporters: Nuzest

Autumn 2021

• We Can't Wait Campaign (#wecantwait!) - Update
• Secure IBD
• I Can't Wait Campaign - Update
• Camp Purple Live 2021
• National IBD Care Working Group
• IBDsmart - a simple mobile app assisting patient care
• New IBD Nurse for Lakes District Health Board
• Camp Purple Live 2021 - perspective from a final camper
• World IBD Day 2021
• Camp Purple Live - Parent's seminar
• Living with IBD - Seminar & workshop
• Emma Taylor - New Coordinator for Wellington support group
• New Support group coordinator in Waikato
• New Support group coordinator in Rotorua
• Interview with Bianca Howe, from Shine On - discover why they chose to support CCNZ
• Registrations for Camp Purple Live 2022
• Experience Camp Purple Live for a day 2022

Summer 2020/2021

• We Can't Wait Campaign - #wecantwait!
• I Can't Wait Campaign launch
• Camp Purple Live 2021 update
• Thank you - Anna Scanlen
• Interview with Jeff Parker - Hurford Parker Insurance & Mortgage Brokers
• Patient experience of dietetic care in New Zealand
• 2020 Crohn's and Colitis Support Group survey results
• Meet Nelson’s and Manawatu’s New Support Group Coordinators
• The Gingerbread Christmas House in Canterbury supporting Camp Purple Live again
• Lockdown Competition and Camp Purple Live Hoodie Design
• Beeswax Wraps – fundraising for Camp Purple Live
• Laura Hancock is not usually one to talk about her journey living with Crohn's disease
• Val Clark - Hawkes Bay Craft Market
• Rhys Rigione-Pisone is an IBD Warrior from the Hawkes Bay

Autumn 2020

• COVID-19 Update
• COVID-19 Top 10 tips
• An introduction to blood tests commonly measured in children with IBD
• Camp Purple Live 2020
• IBD Nursing: The role of the IBD Nurse
• 3 Ply's story about racing across India in a rickshaw to raise funds for Camp Purple Live 2020
• Annual Scientific Meeting
• Ally Bain / I can't wait campaign
• Interview with the Freemason's
• 2018 IBD Nurse Travel Award winner, Megan McKay
• Our new Operations Manager

Winter 2019

• Camp Purple 2019
• Introducing the new camp committee
• 3ply take on the Rickshaw run 2019
• Health Professional Members
• Ally Bain coming to New Zealand
• Nail the nutrition basics - Catherine Wall
• Making the invisible visible - IBD and fatigue
• Another incredible day!
• CCNZ is developing their support strategy

Summer 2019

• Introducing the new newsletter
• The positive effects of exercise - Georgina Fagan
• From the Chair
• Emerge Health
• Introducing Livewire
• Freemasons support & charity - supporting Camp Purple Live
• About IBDsmart
• Helping your body through your mind - the experience of an ulcerative colitis patient
• Getting involved in clinical research

Autumn 2018

• Camp Purple 2018
• EFCCA Youth Conference
• Teens 4 Teens: Diet and Nutrition
• Letter from Chief Executive
• 2018 European ECCO Conference in Vienna
• Impact of Paediatric IBD
• Youth Ambassador

Spring 2017

• Reducing the Burden of Inflammatory Bowel Disease 
• First study of IBD rates in NZ children
• Junior Campers Day
• EFCCA General Assembly in Warsaw
• Bowel Cancer & IBD
• Shared Moments

Autumn 2017

• Camp Purple Live
• Toilet Map Initiative
• Microscopic Colitis
• New Zealand Burden of Disease Report
• Shared Moments
• New Teenage Transition Website
• EFFCA Youth Conference

Autumn 2016

• Camp Purple Live
• Appointment Of Our First Ambassador
• Shared Moments
• A Better Path to IBD Understanding
• Importance of Blood Testing

Autumn 2015

• IBD Nursing
• Your Health
• Tame Your Gut
• Shared Stories
• Identifying Bad Guys Driving IBD

Autumn 2014

• A Great Conference
• Comings & Goings
• Faecal Calprotectin
• New Drug On The Horizon
• Negotiating The Health System 
• Employment Issues

Winter 2013

• CCNZ Joins EFCCA
• What Is Going On In My Gut?
• Impact Survey Results
• Food For Flares
• Paedeatric Gastro - Clinical Network

Summer 2012/2013

• Chairman Represents CCNZ At EFCCA
• Your Health - Fatigue
• Nelson Link On Crohn's
• Around The Regions