'MOVING ON' NEWSLETTER 


'Moving-On'
 is the newsletter of Crohn's and Colitis New Zealand for people living with these diseases, their family and friends, and interested New Zealanders. Click on an issue below for links to the individual issues.

Summer 2023/2024

  • Another representative for CCNZ and Camp Purple, Professor Andrew Day recognised as a Kiwibank Local Hero Medallist

  • Exciting News: Winner of the Nurses Travel Award!

  • The Importance of Being in Remission Before Considering a Pregnancy and What Your IBD Team Can Do for You

  • JAK inhibitors for IBD – an exciting new approach to managing IBD

  • Camp Purple Live 2024: A Spectacular Adventure at El Rancho, Waikanae

  • All about food and IBD.

  • The IBD Nurse in the Private and Rural Sectors

  • Christmas Classic with a Twist!

  • NZ IBD Patient’s Postcode Lottery access to Gastroenterologists and Specialist Nurses

  • Neglecting your IBD - from a personal teenage perspective

  • Codesign and consultation ensuring consumer needs are met: Building an eHealth platform for Children with IBD.

  • A Journey from Patient to Coordinator - Meet Kade West-Hill, Whangārei's New Crohn’s and Colitis Support Group Coordinator

  • Jasneel Deo's commitment to the EFCCA "Leaders of Tomorrow" Youth Academy Program

  • From Teenager to Triathlete: My Battle with Crohn's Disease and the Journey to Reclaiming Life

  • From lockdown challenge to family marathon: Donovan Neill's inspiring journey for CCNZ

  • Highlights from the 9th Annual Parents and Caregivers Seminar

  • From 5km to 42km: My Marathon Journey for Crohn's and Colitis NZ

  • Empowering New Zealand Students with IBD: Applications Now Open for the 2024 Giving Circle Scholarship Award.

  • Running for a cause!

Winter 2023

  • A primer on the new biologicals.

  • New Zealand Society of Gastroenterology Update

  • ‘Update from the IBD Nurses’.

  • Diet, micronutrients and Crohn disease: summary of a recent study.

  • Embracing Autumn's Bounty: Exploring the Delights of Pumpkin and Its Health Benefits

  • Answering your questions about Vitamin D for people with IBD.

  • Current state of dietetic services for inflammatory bowel disease patients in New Zealand: Survey Results and Research Highlights.

  • Crohn’s and Colitis New Zealand Charitable Trust Announces Two New Ambassadors

  • Spreading Awareness and Making Strides: Updates on Charlotte's Efforts and the 'I Can't Wait' Campaign

  • Embracing the Blessings of Living with IBD: Highlights from World IBD Day.

  • Camp Purple Live, 2023: Empowering Children with IBD for a Life Beyond Limits

  • Founder of Crohn's and Colitis New Zealand Trust Steps Back After 13 Years.

  • We are excited to announce the dates of the 2023 Camp Purple Live Parent & Caregivers' Seminar.

  • REGISTRATIONS FOR CAMP PURPLE LIVE 2024, NOW OPEN!

  • Embracing the Purple Spirit!

  • Building Strength and Support: Introducing the Wairarapa Support Group for Crohn's and Colitis

  • Meet Tanya, our new Coordinator for the Manawatu – Whanganui Crohn’s & Colitis Support Group

  • Our professional members

Summer 2022/2023

  • What do we have in common with Cotton-Top Tamarin Monkeys?

  • Living with IBD - seminar & workshop
  • ‘We need more IBD Nurses’

  • Camp Purple Live 2023 - update.
  • Starship to hire a paediatric IBD nurse and clinical psychologist!.

  • Meet the IBD Clinical Nurses Specialists for Capital & Coast, Wellington.

  • Camp Purple Research.

  • What is CCCare?

  • Korrin Barrett’s (life unlimited) story.

  • Interview with Jesse Sigurdsson of Shining Peak Brewery and why they chose to support Camp Purple Live.

  • Fundraiser! - Kade West-Hill

  • Support Group Coordinators Conference

  • Meet Kerry, the coordinator for our Bay of Plenty Support Group.

  • Want to find your nearest support group?

  • WE NEED YOUR HELP!

  • Our professional members
   

Autumn / Winter 2022

  • Change of supplier and brand for adalimumab
  • Living with IBD - seminar & workshop - update
  • What is the fuss about the IBDeat study?
  • Camp Purple Live 2023 - update.
  • Crohn’s Colitis Care can now be used to help manage children with Inflammatory Bowel Disease!

  • World IBD Day 2022! IBD & Life Cycles.

  • Our new and revised Living with IBD handbook is out now!

  • Welcome aboard Claire Weatherford.

  • Introducing the committee of the Canterbury CCSG.

  • Give a little fundraiser… Jamie Reddish.

  • Peter Warren featured in our video for World IBD Day 2022. Read his story here.

  • Want to find your nearest support group?

  • WE NEED YOUR HELP!

  • Our professional members
   

Summer 2021/2022

  • We Can't Wait Campaign (#wecantwait!) - Update
  • Living with IBD - seminar & workshop.
  • Quality of Life study.
  • Camp Purple Live 2022 - update.
  • First time camper recounts his experience at Camp Purple Live 2021.

  • We need more IBD Nurses in New Zealand.

  • Learning self-management of your IBD.

  • Belinda Brown, our new Chief Executive Officer.

  • The IBDeat study: Does IBD affect what you eat or how physically active you can be?

  • We have been very busy revising and updating our Living with IBD Handbook.

  • Clinical Trials in Inflammatory Bowel Disease - Help yourself and others.

  • Intro to Mindfulness & IBD.

  • Introducing Christina and the Southland Crohn’s and Colitis Support Group.

  • Introducing Auckland CCSG.

  • We spoke to Donovan Neill about why he is fundraising for CCNZ.

  • Fundraising for CCNZ - Luke White

  • From one of Camp Purple’s supporters: Nuzest

  • Our professional members
  • Together we can make a difference - how to fundraise for CCNZ.
   

Autumn 2021

  • We Can't Wait Campaign (#wecantwait!) - Update
  • Secure IBD
  • I Can't Wait Campaign - Update
  • Camp Purple Live 2021
  • National IBD Care Working Group
  • IBDsmart - a simple mobile app assisting patient care
  • New IBD Nurse for Lakes District Health Board
  • Camp Purple Live 2021 - perspective from a final camper
  • World IBD Day 2021
  • Camp Purple Live - Parent's seminar
  • Living with IBD - Seminar & workshop
  • Emma Taylor - New Coordinator for Wellington support group
  • New Support group coordinator in Waikato
  • New Support group coordinator in Rotorua
  • Interview with Bianca Howe, from Shine On - discover why they chose to support CCNZ
  • Registrations for Camp Purple Live 2022
  • Experience Camp Purple Live for a day 2022
  • Our professional members
  • Together we can make a difference - how to fundraise for CCNZ.

Summer 2020/2021

  • We Can't Wait Campaign - #wecantwait!
  • I Can't Wait Campaign launch
  • Camp Purple Live 2021 update
  • Thank you - Anna Scanlen
  • Interview with Jeff Parker - Hurford Parker Insurance & Mortgage Brokers
  • Patient experience of dietetic care in New Zealand
  • 2020 Crohn's and Colitis Support Group survey results
  • Meet Nelson’s and Manawatu’s New Support Group Coordinators
  • The Gingerbread Christmas House in Canterbury supporting Camp Purple Live again
  • Lockdown Competition and Camp Purple Live Hoodie Design
  • Beeswax Wraps – fundraising for Camp Purple Live
  • Laura Hancock is not usually one to talk about her journey living with Crohn's disease
  • Val Clark - Hawkes Bay Craft Market
  • Rhys Rigione-Pisone is an IBD Warrior from the Hawkes Bay

Autumn 2020

  • COVID-19 Update
  • COVID-19 Top 10 tips
  • An introduction to blood tests commonly measured in children with IBD
  • Camp Purple Live 2020
  • IBD Nursing: The role of the IBD Nurse
  • 3 Ply's story about racing across India in a rickshaw to raise funds for Camp Purple Live 2020
  • Annual Scientific Meeting
  • Ally Bain / I can't wait campaign
  • Interview with the Freemason's
  • 2018 IBD Nurse Travel Award winner, Megan McKay
  • Our new Operations Manager

Winter 2019

  • Camp Purple 2019
  • Introducing the new camp committee
  • 3ply take on the Rickshaw run 2019
  • Health Professional Members
  • Ally Bain coming to New Zealand
  • Nail the nutrition basics - Catherine Wall
  • Making the invisible visible - IBD and fatigue
  • Another incredible day!
  • CCNZ is developing their support strategy

Summer 2019

  • Introducing the new newsletter
  • The positive effects of exercise - Georgina Fagan
  • From the Chair
  • Emerge Health
  • Introducing Livewire
  • Freemasons support & charity - supporting Camp Purple Live
  • About IBDsmart
  • Helping your body through your mind - the experience of an ulcerative colitis patient
  • Getting involved in clinical research

Autumn 2018

  • Camp Purple 2018
  • EFCCA Youth Conference
  • Teens 4 Teens: Diet and Nutrition
  • Letter from Chief Executive
  • 2018 European ECCO Conference in Vienna
  • Impact of Paediatric IBD
  • Youth Ambassador

Spring 2017

  • Reducing the Burden of Inflammatory Bowel Disease 
  • First study of IBD rates in NZ children
  • Junior Campers Day
  • EFCCA General Assembly in Warsaw
  • Bowel Cancer & IBD
  • Shared Moments

Autumn 2017

  • Camp Purple Live
  • Toilet Map Initiative
  • Microscopic Colitis
  • New Zealand Burden of Disease Report
  • Shared Moments
  • New Teenage Transition Website
  • EFFCA Youth Conference

Autumn 2016

  • Camp Purple Live
  • Appointment Of Our First Ambassador
  • Shared Moments
  • A Better Path to IBD Understanding
  • Importance of Blood Testing

 

Autumn 2015

  • IBD Nursing
  • Your Health
  • Tame Your Gut
  • Shared Stories
  • Identifying Bad Guys Driving IBD

Autumn 2014

  • A Great Conference
  • Comings & Goings
  • Faecal Calprotectin
  • New Drug On The Horizon
  • Negotiating The Health System 
  • Employment Issues

Winter 2013

  • CCNZ Joins EFCCA
  • What Is Going On In My Gut?
  • Impact Survey Results
  • Food For Flares
  • Paedeatric Gastro - Clinical Network

Summer 2012/2013

  • Chairman Represents CCNZ At EFCCA
  • Your Health - Fatigue
  • Nelson Link On Crohn's
  • Around The Regions

 

 
 
 

 

 

Do you want the latest news on managing your health, research & treatments, PLUS inspiring volunteer & patient stories? Subscribe to Crohn's & Colitis New Zealand's newsletter 'Moving-On'.  I understand that by signing up for the email list means CCNZ may forward invitations about Crohn's disease and ulcerative colitis research. 

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