Parent & Caregivers' Seminar

Dates announced! - Saturday, 27th July 2024

An informative and engaging seminar tailored specifically for parents and caregivers of children living with Crohn's disease and ulcerative colitis. Our aim is to provide you with a comprehensive understanding of these chronic inflammatory bowel diseases while equipping you with essential knowledge and tools to support your children's well-being.

The seminar features sessions led by expert dietitians, surgeons, nurses, and psychologists who will provide valuable insights into the latest treatments, therapies, and medical advancements. One of the most important aspects of our seminar is the opportunity for parents to connect and network with others who are facing similar challenges and concerns. By sharing their experiences, parents can gain a better understanding of their child's illness and learn new coping strategies.

The parent and caregivers' seminar is open to all parents and caregivers of children with Crohn's disease or ulcerative colitis.

The seminar will take place over a single day.

Date: 27th July 2024
Location: Naumi Hotels, Auckland Airport

 

The seminar will take place from 9 AM to 5 PM, with a registration fee of $75.00. Additionally, a dinner will follow the seminar, offering an opportunity to connect and engage with other parents and speakers. The combined fee for the seminar and dinner is $100.00.

The registration fee of $75.00 for the Camp Purple Live Parents & Caregivers Educational Seminar includes the following:

  • Access to all seminar sessions and workshops
  • Conference facilities for the duration of the event
  • Catering services throughout the day, including meals and refreshments

 

The registration fee of $100.00 for the Camp Purple Live Parents & Caregivers Educational Seminar includes the following:

  • Access to all seminar sessions and workshops
  • Conference facilities for the duration of the event
  • Catering services throughout the day, including meals and refreshments
  • Evening dinner costs

 

Please note that the registration fee does not include the following:

  • Travel expenses to and from the seminar venue.
  • Accommodation costs.

 

To secure your spot at the Camp Purple Live Parent & Caregivers' Seminar, you will need to complete an online registration form. Spaces are limited, so we encourage early registration to avoid disappointment. Click here to access the online form.

 

For any inquiries or further information, please contact our committee on parentseminar@crohnsandcolitis.org.nz

Whether you are a parent, guardian, relative, or caregiver, we warmly welcome you to join us and gain valuable insights into effectively managing these conditions.

Applications closing date 12th of July 2024.

Please see our list of speakers:

Professor Andrew Day, is a Paediatric Gastroenterologist, based in Christchurch. Professor Day has extensive experience in treating children and adolescents with IBD. He has held prestigious positions in Toronto, Sydney, and now at the University of Otago in Christchurch.

Professor Day’s clinical and research work focuses on IBD in young patients, supported by Cure Kids. He also chairs the committee for Camp Purple Live, is a medical advisor to CCNZ and is also one of our Trustees.

At the seminar, Professor Day will give an insightful overview of IBD.

 

Jacqui Stone is the IBD Nurse Practitioner at Te Whatu Ora Counties Manukau. Jacqui Stone has a distinguished career spanning over 20 years, focusing on gastroenterology, hepatitis, and research.

Jacqui will be talking about the role of the IBD Nurse and transitioning from paediatric to adult care, sharing her extensive knowledge and experience in the field.

 

Stephanie Atkinson, a dedicated nurse working alongside the IBD Team at Starship Hospital. With specialised expertise in Child and Adolescent Mental Health, Stephanie has devoted her entire career to this field and even completed her Masters in it.

Stephanie has a passion for working with children and families, and she is enthusiastic about all things mental health! She has been a valuable member of Starship's Consult Liaison Team for over two years. Before joining Starship, Stephanie gained extensive experience in various community mental health roles both in NZ and overseas. At the seminar, Stephanie will talk about the emotional impact of living with IBD – for both the young person and their families.

 

Stephanie Brown is a paediatric gastroenterology dietitian at Christchurch Hospital. In her role, Stephanie works alongside the gastroenterology multidisciplinary team, managing nutrition therapy and assessing the nutritional adequacy of children with IBD.

Stephanie has recently commenced her postdoctoral studies with Professor Andrew Day at the University of Otago, where she continues her research on dietary aspects of paediatric IBD. Join us to hear Stephanie share her expertise and insights, via zoom, on the role of nutrition in managing paediatric IBD.

 

Professor Andrew Day will give an insightful overview of Camp Purple, our camp for children and teens with IBD. Joining him will be a camper and their parent, who will share their personal experiences and explain why Camp Purple is so important to them.

 

 

 

 

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