BURDEN OF DISEASE REPORT

 

Reducing the Growing Burden of
Inflammatory Bowel Disease
in New Zealand


Read More...

 

CAMP PURPLE LIVE! 

 
Don't Miss Out!!

Applications will be opening soon for
Camp Purple Live 2022 
 

read more...

 

SHARE MOMENTS...
Personal stories from our Everyday Heroes!  


Share a real moment and make a difference in someone's day!

 

 read more...

 

I CAN'T WAIT!

 

Want to find out how to apply for an I Can't Wait card?

Do you want to display an I Can't Wait sticker in your business window?


Find out more...

 

IBD & ME...


Transitioning to Adulthood with IBD
is an important milestone.  
This new website offers tips and info
to help you prepare for your big step. 
 

Read More...

 

MAKE A DIFFERENCE.
DONATE NOW!

 
Large or small,
your donation makes a big difference.  


Read More...


#wecantwait

Fund ustekinumab for New Zealanders with severe

Crohn’s and ulcerative colitis. 

 
Your support is vital and will help make
this initiative a reality!!

 

Click here to read more
 

 

 

 

 

Buy an Entertainment membership today and support us!

 

 

Read more...

  

COVID-19 Updates

COVID-19 and IBD; want to know what to do?

 
Read more...

Our Vision

We will transform the lives of children, young people, families and all those affected by IBD and will lead these communities to increasing connectedness. 

Crohn’s & Colitis New Zealand is a growth focused and sustainable organisation which innovates and is responsive to opportunities to optimise and support the well-being of those affected by IBD.

Our Mission

We make lives more liveable for everyone in New Zealand affected by IBD. 

We offer information channels, education and support networks and provide a structure around which people can unite to raise awareness of these diseases. 

We seek to enhance their capability to live in a positive and hope-filled environment which will contribute to their happiness and help them feel empowered to maximise their potential and realise their life goals.

 

Proposal to widen access to adalimumab and award Principal Supply - consultation process now open 

Click here to read consultation.

Consultation process closes on the 22nd of September 2021.

 

Pharmac review - want to read our submission?

Click here.

 

Living with IBD - seminar & workshop.

Want to find out more? Want to download the slides from the speakers?.... Click here

REGISTRATIONS FOR 2021 - NOW CLOSED!


We Can't Wait

Fund ustekinumab for New Zealanders with severe Crohn’s and ulcerative colitis. 

Over 20,000 New Zealanders suffer from Crohn’s disease and ulcerative colitis, one of the highest per capita rates in the world. Despite this, NZ doesn't provide funding for this standard, mainstream medication, funded in Australia and throughout the Western world. This medication has the potential to  offer those with the most aggressive disease a life without chronic pain, bloody diarrhoea, repeated hospitalisations and life-altering surgeries, and the hope  for a fulfilling work and family life.

The petition currently sits with the petitions committee for their decision.  #wecantwait

 

COVID-19 Updates - click here!

 

 

 

Can't Wait?  Don't Wait!

 

The CCNZ toilet card clearly states that the holder has a medical condition and needs to use a toilet quickly.  Although it does not guarantee you access to a toilet, most places you visit will be willing to help you.  The card is a small, credit sized card, designed to fit easily into your purse, wallet or pocket.  You can show the card when you're out shopping and socialising and it may help you gain access to a toilet.
If you would like a “I Cant Wait" toilet card please email us and we will send out an application form for your medical provider to complete or download your application here.

 

Do you want to support "I Can't Wait!" cardholders?

 

Placing a CCNZ sticker in the window of your business that you recognise the "I Can't Wait" card can truly change lives.

Honouring the card allows people with Crohn's disease, ulcerative colitis and other medical condition to use your facilities in the event a cardholder needs one urgently.

This simple act of kindness gives people with medical conditions the confidence to leave home without the fear of having an accident in public. It gives them the opportunity to do what most of us take for granted: the opportunity to leave home, to shop, to meets friends, and to live a normal life.

Holders of the "I Can't Wait" card have gone through the process of applying for the card which requires their doctor's documentation that they have a condition for which the card is necessary.

CCNZ recognises and publicises participating business on our webpage and social media platforms. Let people know that your business is making a difference in the lives of members of your community.  Click here to find out who they are.

For more information please email us.

Want to know what to do if someone presents this card to you?  Download our educational sheet here.

 

 

 

 
 
 

Reducing the Growing Burden of IBD in New Zealand

Click to read the report

 

 

Latest News

News icon. BMS ulcerative colitis drug suffers Phase II setback: regulatory roundup - Clinical Trials Arena.. 26 Oct 2021

News icon. Benefits and Side Effects of Black Seed Oil - Asap Land.. 26 Oct 2021

News icon. Groundbreaking Electroceutical Research on Spleen Function - University of Houston.. 26 Oct 2021

News icon. J&J's Stelara effective in Crohn's, ulcerative colitis patients with no prior treatment | Seeking Alpha.. 26 Oct 2021

News icon. J&J's Stelara effective in Crohn's, ulcerative colitis patients with no prior treatment | Seeking Alpha.. 26 Oct 2021

News icon. Janssen Scores Two Clinical Victories While ERYTECH Misses in Pancreatic Cancer | BioSpace.. 26 Oct 2021

News icon. Ji Seok Park, MD: The Connection Between Crohn's Disease and Kidney Disease - HCPLive.. 26 Oct 2021

News icon. New Analyses Suggest Favorable Results for STELARA ... - Pennsylvania News Today.. 26 Oct 2021

News icon. New Analyses Suggest Favorable Results for STELARA® (ustekinumab) When ... - PR Newswire.. 26 Oct 2021

News icon. New Analyses Suggest Favorable Results for STELARA® (ustekinumab) When ... - Yahoo Finance.. 26 Oct 2021

News icon. New Analyses Suggest Favorable Results for STELARA® (ustekinumab) When ... - Yahoo Finance.. 26 Oct 2021

News icon. New Analyses Suggest Favorable Results for STELARA® (ustekinumab) When Used as a ... - WSAW.. 26 Oct 2021

News icon. Open communication, not waiting key for identifying 'right treatment' in UC - Healio.. 26 Oct 2021

News icon. Real-life “F.R.I.E.N.D.S” turn to surrogacy after beating death sentence - KOTA.. 26 Oct 2021

News icon. Risankizumab Effective Treating Moderate-to-Severe Crohn's Disease - HCPLive.. 26 Oct 2021

News icon. Upadacitinib Shows Potential for Ulcerative Colitis - Medscape.. 26 Oct 2021

+ Text Size -
Original generation time 2.2348 seconds.