Being diagnosed with inflammatory bowel disease (IBD) is challenging for anyone – but having a child diagnosed with IBD can have a significant impact, not only on the child, but also on the wider family.

Children with IBD face the challenge of an unpredictable and potentially embarrassing disease.  They may feel embarrassed about their symptoms or frequent visits to the bathroom.  These distressing illnesses can be frightening and can lead to children feeling isolated.

It is important to know that you and your family are not alone!

As a parent it can be difficult knowing how you can help your child cope.  It’s important to talk about your feelings with a parent or doctor.  Meeting others who are going through similar challenges can make a big difference.



CCNZ has a range of resources and services that can help you including:



Browse our website, read about other people’s experiences and email us or call our office (0800 ASK IBD) to have information sent directly to you.




  • The GI Kids website provides information for kids and parents, giving help and hope for children with digestive disorders.


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